Monday, June 4, 2012

Haven't written in a while, sorry about that!  Blueberry picking was fun and successful!  I now have enough blueberries to last a lifetime!
I made Dave a gluten-free blueberry cake last night (with his help!).  It was a recipe from his grandmother, it turned out great!  It said to put the batter in a "tube pan".  I'd never heard that term before (it means Bundt pan), so I baked it in a 8X8 pan!  I talked to my mother later that evening and she told me it was a Bundt pan!  I have one, I've just never heard it called that before! Oh well, next time I'll remember!
Since my last flare up, which affected my shoulders, I've never gone back to where I was prior to the flare.  I was taking my NSAID and muscle relaxers, but no pain medication.  I want to go back to that condition.  When I see my Rheumy later this month I'm going to ask her if I will go back to that prior condition.  I hate taking the pain med because all I do is sleep!
Yesterday we went to a "Graduation Lunch" for our Goddaughter.  It was fun and enjoyable to see everyone again!  I became so fatigued though I could hardly keep my eyes open!  I rested my head on my husband's shoulder for a few minutes, and I felt rejuvenated!  Funny how a few minutes rest does the trick!  We were asked to go to their house after the lunch to visit, I really would have loved to have gone, but I was just too exhausted!  Bummer!
I came home and rested, I didn't nap, and felt well enough to go to Mass at 5 PM!  I haven't felt well enough to go to Mass in weeks!  The Mass was a joyful and very spiritual experience for me!  I hope I feel well enough to go next week!
At the end of June, I will be going to my parents' home to bring my father to radiation treatments for his prostate cancer.  Only problem is I get too fatigued driving the 4 hours to their home.  We are looking at flights as well as stopping half way and spending the night in a hotel, before completing the trip.  We will see.
AS complicates everything!  I don't want my daughters' memory of me to be of lying in bed!  I try to keep as active as I can.  I was doing well coping with this disease until the flare affected my shoulders.  That really knocked me for a loop!  I couldn't do the things I did before, like cooking or lifting anything.  I still am not back to "normal" but the pain has subsided.  The fatigue got worse after this flare, so I tire easily.  I got very depressed and went to see my therapist.  She helped me realize that I can still do the things I like to do, just differently.  I left feeling better and regained my positive outlook!  Gotta go for now!  Remember, this is all part of the fun of having Ankylosing Spondylitis!  :-)       

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